Phoenix Rising
Sorry for not writing sooner, my mental state of mind is giving me more difficult times than you can imagine. My body is giving me more troubles I find it urgent that I write another blog before it is far too difficult to continue. It has become more and more problematical to focus and remember things. I’ve become very disoriented and have trouble concentrating on tasks. I feel it is time for my health’s sake to leave my home in Florida and venture back to the open compassionate arms of my loyal sisters’ in NY. My doctors want to try a new round MS medications to see if they will help to slow the progression of my disease. After reviewing my newest MRI it seems, the Betaseron injections are not working as well as we had all hoped.
With options of; Novantron (Chemotherapy), Tysabri (New antibody monthly infusion), or Copaxone http://www.youtube.com/watch?v=N_ysuwnvUH8 (gladamire Acetate daily injections) the choices are slim. Choosing was sort of made for me because of several factors, mostly because of my financial state. After discussing the severe danger of chemotherapy and how it damages your heart that choice was out. Tysabri is the latest drug of choice that seems to work wonders for all that use it, however the two downsides is the staggering cost of $3,400 a month and the fear of a deadly brain infection. Leaves me with the cost effective $2,200 monthly and no major side effects with Copaxone. Fortunately my insurance covers 60% and they have referred me to the Chronic Disease fund for financial aid for the co-pay balance.
My mother, aunt, and childhood friend traveled to Florida to pack my bags and shuttle me to New York. They were very concerned for my declining health. The love of family outweighs all else.
My life has been quite exciting for many years and I have been blessed with so many skills that I can’t describe the feeling of pride in all that I have accomplished. Uncertainty and dreams have filled my memories with success and way to many failures.
Unfortunately I don’t have the luxury of escaping reality, I must turn and face it with broad shoulders and face my fears. With all of my friends help I will not give up. You give me faith and hope!!! Keep writing and sending the letters and post cards. Thanks for not turning away.
I’m trying to take back my mind, if I can control it and not let it master me, I win! Challenge yourselves daily and be amazed at what your capable of.
It would seem that my immune system is very powerful and for every thing that I try to do to help; it revolts. Lets see from what is remaining of my former life I can resurrect….lose my health, lose my wife, lose my house, , lose my job, lose my self-respect! Look at my ashes!!!!!
“Most people live their lives hanging on to hopes and dreams that never come true. But… they hold on to them and never let go. A man only needs one thing in life, he just needs someone to love.” Derek Nickerson 2009
Derek
Sorry for not writing sooner, my mental state of mind is giving me more difficult times than you can imagine. My body is giving me more troubles I find it urgent that I write another blog before it is far too difficult to continue. It has become more and more problematical to focus and remember things. I’ve become very disoriented and have trouble concentrating on tasks. I feel it is time for my health’s sake to leave my home in Florida and venture back to the open compassionate arms of my loyal sisters’ in NY. My doctors want to try a new round MS medications to see if they will help to slow the progression of my disease. After reviewing my newest MRI it seems, the Betaseron injections are not working as well as we had all hoped.
With options of; Novantron (Chemotherapy), Tysabri (New antibody monthly infusion), or Copaxone http://www.youtube.com/watch?v=N_ysuwnvUH8 (gladamire Acetate daily injections) the choices are slim. Choosing was sort of made for me because of several factors, mostly because of my financial state. After discussing the severe danger of chemotherapy and how it damages your heart that choice was out. Tysabri is the latest drug of choice that seems to work wonders for all that use it, however the two downsides is the staggering cost of $3,400 a month and the fear of a deadly brain infection. Leaves me with the cost effective $2,200 monthly and no major side effects with Copaxone. Fortunately my insurance covers 60% and they have referred me to the Chronic Disease fund for financial aid for the co-pay balance.
My mother, aunt, and childhood friend traveled to Florida to pack my bags and shuttle me to New York. They were very concerned for my declining health. The love of family outweighs all else.
My life has been quite exciting for many years and I have been blessed with so many skills that I can’t describe the feeling of pride in all that I have accomplished. Uncertainty and dreams have filled my memories with success and way to many failures.
Unfortunately I don’t have the luxury of escaping reality, I must turn and face it with broad shoulders and face my fears. With all of my friends help I will not give up. You give me faith and hope!!! Keep writing and sending the letters and post cards. Thanks for not turning away.
I’m trying to take back my mind, if I can control it and not let it master me, I win! Challenge yourselves daily and be amazed at what your capable of.
It would seem that my immune system is very powerful and for every thing that I try to do to help; it revolts. Lets see from what is remaining of my former life I can resurrect….lose my health, lose my wife, lose my house, , lose my job, lose my self-respect! Look at my ashes!!!!!
“Most people live their lives hanging on to hopes and dreams that never come true. But… they hold on to them and never let go. A man only needs one thing in life, he just needs someone to love.” Derek Nickerson 2009
Derek
